Many women and girls don’t know what endometriosis is though it affects about 6.3 million of American women.
We don’t think about medical conditions until something happens to us personally or to someone really close to our heart and soul. Then we really research and dig into data to learn more, so we could help more to a person in need.
One of the medical conditions that remain “under radar” from our lives is endometriosis. I didn’t know much about this disease that affects between 2 percent and 10 percent of women of reproductive age, until one of friends finally got diagnosed and treated with this disease.
After years and years of pain and agony, she was able to start her pain-free life. Finally. Joy of living and breathing and doing many things she was able to do.
I asked Rebecca Alvandi of Maxim, who is intimately familiar with women’s hygiene needs and who regularly provides education on women’s health, to talk to us about the endometriosis, and what we all can do to know the symptoms and educate ourselves on many ways of dealing with it.
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Why haven’t most people heard of it?
By Rebecca Alvandi, Co-Founder of Maxim
Probably because the most common symptoms of endometriosis are commonly confused with period symptoms. This blog gives an overview of endometriosis: its causes, symptoms, potential treatment and prevention, and links with more information.
What is Endometriosis?
Endometriosis is a disorder that occurs when the endometrium, or lining of a woman’s uterus (womb), grows in other parts of the body. Although it is most common in women who are in their 30s and 40s, it can still occur in younger girls.
Before understanding why endometriosis causes pain and problems, we should review the monthly menstrual cycle.
Each cycle, the uterine lining builds up with blood vessels and tissue in preparation to receive the egg that gets released from one of the ovaries. If sperm doesn’t fertilize the egg, the uterus sheds the tissue and blood. This is called menstruation, or our period.
Endometrial cells outside the uterus act the same way and respond to the female hormones that control menstruation. The endometrial tissue, regardless of where it is in the body, thickens and bleeds, except there is no exit for the buildup if these cells are located outside the womb.
This build up of tissue results in abnormal growths, which can cause scarring or inflammation. Over time, these growths become larger and larger more painful. Endometrial cells can be found in the abdominal cavity or in the fallopian tubes, on the external surface of the womb, on the ovaries, or between the womb and the rectum (called the Pouch of Douglas).
Symptoms of Endometriosis
Because many of the symptoms occur in varying degrees of severity, this disorder can go undetected for long periods of time. Contrary to general assumption, the amount of pain a woman feels doesn’t determine whether or not she has endometriosis or how many growths she might have.
Symptoms can include:
- Intense and painful menstrual cramps; the pain may get worse over time
- Ineffectiveness of standard, over the counter pain medication
- Chronic pain in the lower back, intestines, pelvis or abdomen
- Spotting or bleeding between periods
- Fatigue
- Pain during or after sex
- Painful bowel movements or painful urination during periods
- Diarrhea, constipation, bloating, or nausea, especially during periods
- Infertility
What causes endometriosis?
There is no definite known cause of endometriosis, but there are several theories. The most common theory is called ‘retrograde menstruation.’ This phenomenon is when endometrial cells travel backwards, up the fallopian tubes and into the body.
One possibility is that parts of the abdominal lining turn into endometrial tissue. Since both the abdomen and endometrium are derived from embryonic cells, certain abdominal cells have the ability to specialize and take on the structure and function of endometrial cells.
Another theory is that the lymphic system carries endometrial cells to other parts of the body.
New research by the Endometriosis Association shows links between dioxin (TCCD) exposure and endometriosis. Dioxin is a toxic chemical byproduct of pesticide manufacturing, bleached pulp and paper products, and medical and municipal waste incineration.
Most ordinary tampons and pads are bleached with chlorine and as a result have been linked to having trace amounts of dioxin in them. That is why organic and natural chlorine free products, such as Maxim tampons, are being increasingly valued for their safety.
Risk factors for endometriosis include:
- never having given birth
- periods which last for more than 7/8 days
- menstrual cycles that are less than 27 days
- a history of chronic pelvic infections
- a family member, such as a mother or sister, who has endometriosis
Treatment options:
The treatment for this disorder depends on several factors such as age, symptom severity, disorder severity, and the desire to have children in the future. Options include pain medication, hormonal medications like birth control to regulate estrogen production, surgery to remove the growths, or in very serious cases, hysterectomies (removal of the uterus and potentially the ovaries and fallopian tubes as well).
What to do if you think you may have endometriosis:
First, don’t worry!
Educate yourself as much as possible so that you can ask informed questions and make the best decision for yourself after consulting your doctor.
Don’t be embarrassed. Your body’s health and your vagina’s health are essential components of your overall mental health. Women who suffer from endometriosis complications can often feel depressed. They may also miss work, school or social engagements due to pain.
Before you can feel like your fabulous, fierce self again, you have to take care of yourself. To keep your vagina healthy, use organic hygiene products such as those produced by Maxim to ensure you do not augment the risk factors of endometriosis by increased exposure to dioxin.
Get regular gynecological checkups and ask if anything feels wrong.
If you think you may have endometriosis, schedule an appointment with your gynecologist/OBGYN. There are several ways in which doctors can examine your condition including pelvic exams, transvaginal ultrasounds, or in complicated cases – a laparoscopy.
14 thoughts on “Endometriosis And What You Can Do About It”
It’s a pity you don’t have a donate button! I’d definitely donate to
this excellent blog! I guess for now i’ll settle for book-marking and adding your RSS feed to my Google account.
I look forward to new updates and will share this site with my Facebook group.
Chat soon!
Oh wow! I feel like this could be my problem. I’ve been avoiding going to the doctor for such a long time. It is painful, especially around my period. Thanks for this info.
So glad to know about it, I’d love to spread this to my freinds and family.
Thanks for the information! Sharing these with the women in my family.
It is hard to distinguish correctly when you have things that are similar in nature. Knowledge helps though, and you’re doing your part here!
I have heard of endometriosis before. I try my best to be up to date on anything regarding women health. My sister was thought to have it, but thankfully she did not. She had to deal with other issues instead.
Thansk for sharing 🙂
Very informative and spot on. A member of our family suffers from endometriosis. We as consumers need to vigil in checking the contents of ALL the products we purchase not matter how large or small. Everything counts when our health is at risk.
You are absolutely right. I’ve never heard of this before, and normally we don’t pay close attention to illnesses until a close relative or friend suffers from it. That’s really alarming, thank you for sharing more detailed information regarding this illness.
I wonder how many women go through life and never realize that they have endometriosis. They just figure they have abnormally bad periods. Dioxin should be avoided for MANY reasons but it is not always known if it is present in the items you use.
Thank you for bringing to light such a horrific diesease that so many women experience, but hardly anyone knows about! Although I knew what endometriosis was, this is the first article I’ve read that helped me truly understand what it is and what it does. Women’s health need to be talked about!
Also, the article by Rebecca Alvandi should not list hysterectomy as a treatment for endo. Hysterectomies DO NOT treat endo unless the ovaries are removed and this treatment is now a last resort for OB/GYNs. Endo is within other parts of the body, that is why it causes so many problems, and removing the uterus does not get rid of the endometrial tissue within the abdominal cavity. Also, endo cannot be diagnosed by any of the means she lists except laproscopy. It cannot be seen on scans or ultrasounds and can only be diagnosed by a doctor actually seeing it within the abdomen. And, tampons are usually not useful since many women have such heavy periods when they have endo. I suggest using a menstrual cup and/or cloth pads to prevent reactions with disposable products and to better manage heavy flows.
Kris,
Thank you for your personal sharing. This condition is hugely understated. I know women with horrible pains who have endo.
Also your recommendations are brilliant and invaluable, as they do come from your personal experience.
Thank you for your heart-felt comments.
Thank you 🙂 Sorry I am so wordy, I am extremely passionate about this topic and about women’s health. It has altered my life forever and I feel obligated to help others by sharing my own experience. I hope that more women and men become aware of this condition. Thank you for helping more people become aware of endo!
Thanks for the post! I have endometriosis and it is a horrible and debilitating illness. It can cause pain, infertility, and so many other things and almost no one knows about it unless they have it! It is so annoying to say “I have endometriosis” and have people respond “What’s that?” I had to diagnose myself and beg the doctor to do the laproscopy to diagnose me. I had always had heavy, painful periods, but it got so much worse and I researched what it could be. When I read the symptoms of endo, I knew I had it. I could not take birth control to treat it because all forms of birth control cause me to lose control emotionally (many women don’t realize how birth control can cause such detrimental side effects, either). I am now on Lupron, which causes a pseudo-menopause state. I am not in as much pain as I was before, and I hope I will not need to have another surgery at least a few years (I have had two already). Women’s health practitioners and women themselves are so behind in female health issues. Women must educate themselves and each other and become advocates when dealing with their health. This has affected my life so much I am going back to school to become a nurse, and I will be focusing on women’s health. I hope to help others so they do not have to suffer as much as I have with this condition.